Looking for support? Call the National Epilepsy Support Service on 1300 761 487 Monday - Saturday

National Epilepsy Support Service

Information and support across Australia, six days a week 
during the holiday period excluding public holidays.

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The National Epilepsy Support Service (NESS) provides support and information for people living with epilepsy across Australia.  It operates Monday to Saturday, 9.00am to 7.00pm (AEST) at 1300 761 487.  NESS is not a medical emergency line.  If you are experiencing a medical emergency, call 000.
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Who can use NESS?

Anyone can use NESS. It is a useful point of contact for:

  • people living with epilepsy
  • family members or carers of people living with epilepsy
  • teachers
  • employers
  • disability workers
  • aged care and health workers
  • people in sport and recreation
  • people with general enquiries.

What is NESS?

NESS is a free, Australia-wide resource that provides support and information for people living with epilepsy and those who assist them. NESS supports people of all ages and at all stages of life. 

How can NESS help?

NESS staff can help with information and resources to support the health and wellbeing of people living with epilepsy.  Resources include epilepsy information sheets and epilepsy management plans.

Our staff can also help you access ongoing support services, including Epilepsy Support Workers or Epilepsy Educators who can help the person with epilepsy meet their individual goals.  We can help you to develop an Epilepsy Management Plan and an Emergency Medication Management Plan and train carers in administering emergency medication.

What can I talk to NESS about?

The NESS information line is staffed by people who know how epilepsy affects health, wellbeing and daily life.  They can provide information on a range of topics, including:

  • epilepsy and seizure management
  • seizure first aid
  • maintaining health and wellbeing
  • risk minimisation strategies such as alcohol and sleep deprivation
  • disclosure
  • childhood and epilepsy
  • pregnancy and epilepsy
  • diet and epilepsy
  • epilepsy and education
  • work
  • epilepsy in the later years
  • disability and epilepsy.

The team can also refer you to the epilepsy organisation in your state or territory so that you can find out about local support, activities and events for people living with epilepsy.  

How do I contact NESS?

NESS is available Monday to Saturday from 9.00 am to 7.00 pm (AEST). Phone: 1300 761 487. 

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All across Australia, our partner organisations are working to support people living with epilepsy. Your generous support ensures we can provide the best possible services for years to come.
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The Epilepsy Smart Australia program received funding from the Australian Government.